Long QT Syndrome

Long QT Syndrome is 3 times more common than childhood leukemia in the US and occurs 1/3 as often as cystic fibrosis and twice as often as PKU (an infant protein deficiency which causes mental retardation.)

It appears to be a common cause of sudden and unexplained death in children and young adults. It may cause 3,000-4,000 sudden deaths in children and young adults each year in the United States.

Understanding genetic issues is crucial in the prevention of many sudden cardiac arrest situations. Causes like Long QT Syndrome can be passed down genetically, and persons with a family history that includes such factors must be aware of their increased risk.

Sudden cardiac death can occur in individuals who appear healthy. Usually it is caused by a previously unsuspected or undiagnosed heart disorder or disease. These include congenital heart disease, or disease that is present at birth. Everyone should be pre-screened in a physical exam that includes a personal and family history of any heart conditions. Prevention and early detection are essential to preventing sudden or premature death.